About the Author

Marcy White BSc, MSW, MBA, enjoyed a career in the investment industry until her son, Jacob was born in 2002. Her academic degrees did not prepare her for caring for Jacob, who was born with Pelizaeus-Merzbacher disease (PMD). Since Jacob’s diagnosis at 10-months old, Marcy has become an advocate for her son and furthering PMD research to help find a cure. Marcy has published many articles about Jacob that have appeared in such publications as the Globe and Mail, Canadian Jewish News and Exceptional Parent. She co-founded www.curepmd.com to educate people about PMD and fund research into finding a treatment. Marcy lives in Toronto with her husband, Andrew, and their three children, Jacob, Sierra and Jamie.